We call my Mom, who lives in northern Wisconsin, a couple times a week. She’s essentially bedridden, but she has an excellent support network through her religious congregation.
She’s not tech savvy, as in, her TV remote sometimes gives her trouble. Deleting messages from her answering machine has eluded her for years. When we call and get the “Messages full” error, we assume she’ll call back when she’s back from the kitchen or whichever room of her apartment she’s been visiting.
Every once in a while, we don’t talk to her for a whole week.
When it hits 8 days, we call someone to go check. Like a week ago Saturday.
She wasn’t there.
On the rare occasions she makes her doctor appointments, it’s a weekday, so this was most unusual. A while later Best Beloved had the thought to check whether her wheelchair was there. No wheelchair, she’d taken it with her. Wheelchair, no Mom, she went out on a stretcher. That’s not being dramatic, it’s reality.
Our friend went by again. Wheelchair was there.
We called the hospital. No Mom. They suggested the hospitals in the nearest big town.
Called another friend in the area, who said yes, it’s time to call the police.
It is marvelously comforting to have the calm, steady voice of a small town police officer take the pertinent details and promise to “send an officer to check it out.”
A while later, they called back and said she’d been picked up by an ambulance.
A week ago.
Before, I was puzzled. Now, I was concerned. Because if someone goes to the hospital, but they aren’t there anymore, and they didn’t go home . . .
We called the hospital again and gave them the new information. The person who answered the phone said, yes, she did come in by ambulance last Saturday.
So we asked, where is she now?
She was quiet for a bit, said “hmm, can you hang on?” and put us on hold.
I found a mindless online bubble shooter game to keep my brain quiet until she came back.
The call dropped.
I called another friend in the area, and while their phone was ringing, Best Beloved’s phone rang, and it was my mom.
She was unclear what happened, other than she’d been in an ambulance, went to the hospital, and was now in one of the care facilities we’ve been trying to convince her to move to because we don’t believe she can live on her own anymore.
She’d asked them to call, not one of her children, but a local friend. And somehow, that didn’t happen. (We’ve talked to a half-dozen people at this facility, and they are one and all professional caring people, so we’re not sure why the call didn’t happen.)
I asked Mom, perhaps in a loud voice, why she didn’t HAVE THEM CALL HER SON?
Her hearing is so bad and the connection so bad, I don’t think she even heard me.
She honestly thought her friend had been called, and that she would notify us (this is, in retrospect, a perfectly reasonable conclusion, though it doesn’t change the fact that I am family, and the other person is not.)
After more phone calls to the facility, we’ve learned that she’d had some medical visitor, or social worker, at her bedside, when suddenly she seemed confused, in a manner and to a degree that prompted a 911 call. She’d been treated for dehydration, but was still fuzzy mentally, and didn’t seem as ambulatory as they expected, so she went to the care facility instead of home.
When we arranged for her to have a working phone, and had a real conversation, she was coherent, cheerful, and pleased with the food where she was staying. Good food is a major driving force in her life. I inherited that, I guess.
She still doesn’t realize she’s there voluntarily, and we don’t plan to tell her. Though after yesterday, maybe it’s no longer voluntary.
Have you ever spoken to someone with expressive aphasia?
We called to check on her, and after the very nice nurse put Mom on the phone and went back to her station, Mom started saying sentences like “Meet when doctor sleep big down the hall eating flow.” About a minute of that, and I stopped her and said “We have no idea what you’re saying.” She continued in the same vein. I asked her if she knew who I was, and she said “Of course. You’re you!” I sort of felt that wasn’t good enough, so I asked “What’s my name?” and she said “Joel. Joel David Canfield.” (This is correct.)
Then she went off rambling again. I called the nurse on my phone while Best Beloved kept Mom talking. When Mom mentioned going to her mother’s house (her mother died 45 years ago) and that I was with her and had fallen down (um, no) our concern escalated.
The nurse came, listened to her conversation for a minute, then took her to her room to assess her. A while later they called and said she was on her way to the emergency room.
A few hours later the hospital called and said it was a urinary tract infection, which we knew could cause disorientation; it’s apparently common in older women. They said a dose of IV antibiotics and a course of oral antibiotics when she got back to the care facility would put her right. The nurse from the care facility called when Mom got back there late that night with the same news.
And that’s how I spent my summer vacation.
My mom has been widowed twice. She’s in very poor health. Her car sat in storage for 15 years after she stopped driving. She has steadfastly refused to move somewhere she can get the care she needs, despite falling multiple times. We were on the verge of initiating a more aggressive approach when this happened. It appears that she may end up staying at this place permanently, which is another adventure, but knowing she’s being monitored is a huge relief.
Since my father died at 52, Best Beloved’s at 58, and her mother is still in pretty good health, this is our first experience with this aspect of caring for an elderly parent. It has been a mite stressful, it has.
I’ve had some flexible squishy tape wrapped around the last joint of my left index finger for over 5 weeks. The doctor is treating a symptom of the severe arthritis in that joint.
On the surface, that sounds like typical old guy stuff.
Let’s dig below that surface.
First, a conundrum: the same joint on my pinkie finger on the same hand has the same severity of damage, yet feels no pain, no discomfort of any kind.
Next, the deeper issue: as a musician, the top joint of my index finger is vital to playing any instrument. You use your left hand to choose the notes you’re playing, and it has to be strong and flexible. Arthritis is neither of those.
The damaged joint affects me physically, and concern about its future affects me emotionally.
There’s good news. The pain and swelling has been exacerbated by a cyst at the end of a bone spur. The bone spur is quite small; the cyst was growing. And painful. And causing swelling and pain in the joint.
Large doses of anti-inflammatory meds plus a 6-week regimen of light pressure (thus the wrap) has almost eliminated the swelling, and reduced the pain, even when I’m playing an instrument, to negligible levels.
Videos of Les Paul, a great enough guitarist to have the most famous guitar in the world name for him, show his aged hands twisted with arthritis, the knuckles swollen.
He was still Les Paul, still one of the greatest jazz guitarists in the world, ever.
I’m gonna hang on to that image.
Since October 1st I’ve read 120 books. That’s 4 books a week, every week, for 7 1/2 months.
Part of it was discovering a new author (John Lescroart) who falls squarely into the category I like to read. And part of that was that I re-read the entire works of Robert Crais and Michael Connelly. There were a few one-offs, a little nonfiction, things like that. There were some I started but didn’t finish; I’m not counting those.
During the same time period I’ve dealt with some emotional trauma, financial concerns, very special events, a big business upswing, starting a new story series with a character who’s been waiting ages to see the light of day, and finishing a book I start long, long ago.
Over the past two months I’ve been shifting, physically. Taking on more projects that require shopping at the home improvement store, sawing and hammering, digging and planting and whatnot. After a year and a half of extreme fatigue, getting my energy back has been highly motivating.
Most of that reading time is going to be spent on my own writing, and on a little more physical activity now that I can do that again.
My dad was 26 when I was born. I was 26 when he died in a traffic accident.
My mom was 18 when I was born. As I approach 60 this year, she just turned 78.
When Dad died at 52 he was riding his bike 20 miles each way to work every day.
Mom has never been quite so active. These days, she’s bedridden and uses a wheelchair to get around—except when she doesn’t.
She’s started falling down. A lot. We’ve reached that point where we’re having the difficult conversations about her care and her living conditions. She’s mentally competent, so it’s her decision, but we worry about her living in a regular apartment instead of somewhere there’s onsite help when she falls.
I’m too old for this. Also too old to have a 15-year-old daughter excited about learning to drive later this year.
Maybe I’m just too old, period.
(Nah. Saw a short video about a wonderful lady who’s 108 and still chugging along, happy as Moses and loved by so many people. Here’s to my next 49 years!)
The last round of blood tests trying to locate the cause of my extreme fatigue over the slightest exertion returned nothing of any meaning. My triglycerides are still slightly elevated despite taking a medication for exactly that result from the last blood test. My potassium is slightly low despite taking one medication and a daily supplement for exactly that result from tests over the past decade. Everything else, everything blood can be tested for (include Valley Fever, the local version of Lyme’s Disease) are exactly as you’d expect for a healthy person.
Rather than becoming a professional patient, since there’s no indication anything life-threatening is going on, no evidence of a ticking clock, and no suggestion that a solution is on the horizon, I’m going to treat myself, starting with the daily bike ride I’ve neglected since the fatigue set in, a return to daily mindfulness meditation, and a continued drive toward emotional and spiritual balance and security.
If you find me beside my bicycle in the ditch with my heart or head exploded, remind me I’m in good health for someone my age. I’m sure I’ll feel much better.
Though I was sick the whole month I wrote 30 new songs in February. I’ll be posting the lyrics and demos first, then working my way back through the last 12 years of songwriting.
I registered my first domain name in February of 1999. (It was spinhead.com, the one I use for my web design company and my primary email.) I’d already been designing websites for 4 years prior, and working with computers since I first went to work with my Dad sometime in 1976 or so.
For the past 20 years I’ve spent more and more time online.
And less and less time in the real world.
I’m trading the deceptive ease of online relationships for the messy complications of infinitely more satisfying connections in real life.
More time out in nature.
More time playing music.
More time with Best Beloved and our Little One.
More time sharing meals with friends. And taking my cooking from good cook to creative chef.
More time writing and studying the craft of writing, novels and music.
More time out in it and less time in my head.
Some Things to Note
If you know me in real life, you know how to get in touch. Do so, or wait till you see me later in the week.
Otherwise contact Sue (Sue@Spinhead.com or 715.296.0347) and she’ll know what to do.
Here’s what this is not about:
- Nothing is wrong. Honest.
- This is not a reaction, it’s an action. A choice based on deep thinking, meditation, and conversation with those I trust most.
- It’s not about you. You didn’t offend or hurt me. Not now, probably not ever.
- I’ll still be writing. A lot.
- I don’t know when, or if, I’ll resume my previous online shenanigans, meaning posting everywhere, emailing like a dervish, living in social media. But don’t hold your breath.
P.S. from Sue – I fully support Joel in this decision. As his Chief Social Media Officer however, you’ll note that I’ll be managing his social media accounts on his behalf. So if you see his tweets or posts on his Facebook Author page, that’s me behind the scenes. ;)